I'm just hangin' while I wait to leave for the Whitaker Center. My pastor, his wife, and some of his closest friends are going out today and I'm going along. It will be nice to get out after this tough week and get my mind on some other things!
I have been pulling my hair out all week with G-PACT web problems and finally my BIL helped me figure out the problem. Now I think I can move on with it, although I have to rebuild a few things I lost in the process. Oh, the frustrations of technology, web programming, and learning new design programs!! It's looking pretty good though I think. I am determined to get it up soon...especially with Julie's death. Tough as it is, people have really rallied and I have had probably 6-8 people ask if they can volunteer or what else they can do. People have become passionate about G-PACT and passing our link and causes around to all friends and family. So, it's crucial that I get CIP info up soon and update the information.
Julies memorial will be on Monday morning. Please keep the family in your prayers.
On Thursday, my doc finally found out that I have a rare infection causing my pain problems for the past 12 weeks or so! He gave me meds and said it SHOULD clear up in a week or two. I'm going to take them for two weeks to make sure since I am immuno-suppressed. I called my transplant doc who added another medication just to make sure we really hit it this time.
It seems like the long acting sandostatin may be kicking in! I only took two doses of the short acting yesterday and am not having any problems. I took some this morning, but will try once a day soon and see if I can get off it completely. If so, I'll plan to try the long acting again because now it's in my system and I shouldn't have to go through a few weeks of problems waiting for it to kick in. Please please pray this is the case! It would be so great to not have to manage my symptoms with the short acting! It still limits my ability to eat because it wears off after a few hours. This wouldn't be the case with the long acting. :)
I have to give Spunky fresh water and a treat before I leave and inevitably when I am ready to walk out the door, it takes me at least another 15 minutes to actually get out the door. Not sure what happens between being completely ready to go and getting to the door...but there is some force that always pulls me back for some reason...
Saturday, January 31, 2009
Wednesday, January 28, 2009
Channeling Anger and Paying Tribute
Yesterday was a challenging day for the gastroparesis community as we said goodbye to one of our own.
G-PACT's tribute:
Julie Werner was born on March 22, 1982. During a trip to Australia in 1994, she developed symptoms she thought were related to a flu-like illness she obtained there. However, after she did not get better she was eventually diagnosed with gastroparesis and chronic intestinal pseudo-obstruction.
On Oct. 25, 2008 Julie received four organs (small bowel, stomach, pancreas, duodenum) at the University of Miami. Although she did well the first few days after the transplant, her condition deteriorated rapidly and continued to do so. After a tough battle with respiratory problems, unexplained fevers, possible rejection, kidney problems, ongoing infections, and eventually septic shock, Julie passed away this morning, Jan. 27, 2009 at around 10:30 AM.
Julie became part of G-PACT in September of 2006. With a degree in communications and public relations from Michigan State, she was an incredible asset to our PR department. She always had a lot of ideas and shared them openly with me and the G-PACT board. She was in the process of creating an awareness kit for our organization, and put together a lot of information and ideas to help us reach out to media outlets. Not long before she left for Miami, she sent me all the information she had worked on so that we could continue in her absence. Because of her, we have an excellent resource of information that we are already using as we prepare for the DDNC in March.
Julie was passionate about G-PACT with a huge desire to return in full capacity upon recovery. She was a top fan of the Detroit Red Wings and loved Harry Potter! She sacrificially gave her time to G-PACT and faithfully attended scheduled board meetings, even when she was not feeling well.
Julie has had an impact on the lives of so many of you with GP and will be sorely missed. I personally am in a state of shock and completely devastated. Although I knew she was not doing well, I really felt like she would be able to pull through. Many of you have been following her progress for a long time. She was loved by many.
If you would like to send a card, flowers, or gift to the family, please contact me privately through FB or e-mail me at hastonc@g-pact.org and I will send you the information you need. I will also post more information over the next few days as it becomes available. A website is available for updates from her family as well at http://www.caringbridge.or
*************************************************************************************
Julie's death was a blow to me. Although I have lost even closer friends before, there is something about this one that just isn't right...not that any are right, but for some reason this one is really getting to me. I feel such a sense of loss. It has been a really tough year, but particularly a rough couple of months. I am inspired though...so many people have responded with comments on how Julie impacted their lives and a surge has erupted in the GP world to fight even harder now. G-PACT has gone into overdrive in trying to push our initiatives even more. We've added some new goals and pushed harder on the ones we already had started. We are determined to speak out at the DDNC very loudly. We will no longer be ignored or blown off! This just can't keep happening simply because the FDA won't approve medications and the government won't take these seriously!
I'm mad. I don't understand. I'm not mad at God...I'm just mad. Maybe at life in general...maybe at those who won't listen...maybe at myself for some reason...I don't know. It's just not right! The good thing about my anger is that I am channeling it into good things. I have accomplished so much in the past 24 hours because I am so bound and determined to get things moving much faster before this happens again. We WILL fight this. And we WILL win.
Sunday, January 25, 2009
Just another day...another crazy day...
So...I have a question...why is it that when one kid has to go to the bathroom, all of a sudden they all do???
So, we're short handed in the tiger room today at church and in my small group of girls, one said she needed to go to the bathroom. She looked like it was pretty urgent and we were not in a convenient spot in the class for me to take her!! I asked the leader of the other group if she'd keep an eye on my kids for a few, and then they ALL decided they needed to go...so we stopped the class and walked down the hall to the bathroom (which has water that smells like eggs and they of course pointed that out...)...maybe it's in theory with the whole yawning thing...and now writing about this, actually, I think I need to pee too...but I just barely did...
Spunky has been cracking me up lately...he is so funny. You'd think at some point I wouldn't laugh at the things he does over and over and over, but I always do...every little thing just makes me laugh so hard even if I've seen him do it 1,000 times. Yesterday, he discovered himself on my webcam. I was holding him in my lap with my webcam on to record it and he was playing on me and then all of a sudden just stopped...looked at the screen for a few seconds, then ran off of me as fast as he could...lol. Totally freaked him out. I put him back in my lap, and he would just not sit still...he was so freaked by that moving creature in the screen. He's reacted in a similar way to mirrors before, but not quite this dramatically. It was so funny.
So anyway, I never found my last dose of sandostatin...even though I know where I put it. I called on Friday to find out my insurance had rejected for my regular mail-in pharmacy to send it out to me again, but they would allow one of two others to send it to me. So.....being quite irritated they hadn't told me this without me initiating the call AND that it was the last day before the weekend...I had to call a new pharmacy, spend a good 15-20 minutes on the phone with them to give them insurance info...but mostly just listing about 30 meds!!! So, my coordinator jumped right on it and called to have them ship it to me by Saturday so I wouldn't be sick all weekend. Well, Saturday morning I get a call that the lady had authorized for it to be shipped for Saturday, but apparently it got messed up and didn't make it out!!! She asked if it would be ok for Monday...I'm thinking, well, no...but what choice do I have??? It was nice that she at least called to let me know though!! Otherwise I would have waited on Saturday expecting it to come and not know that it would be arriving on Monday. Hopefully she sent it out for an AM delivery. I told her I had been really sick!!
On an encouraging note, I did meet a few people with dumping this weekend. One told me that she too had a very severe case of it. She took her first dose of long acting sando three weeks ago, and it's just now kicking in. She told me that she can eat almost anything now with NO symptoms! So, maybe it will kick in in a couple of weeks and I can go off the short acting for good...but in the meantime I will take the short acting. If I find I am starting to have opposite issues, I will stop taking the short term to see if perhaps the long term has kicked in.
Still having pain with bowel movements. I have another appointment with the derm this week, but am still really wondering if I don't have a rectal fissure because it's just not healing on this really strong med for eczema. They didn't see it in my biopsy in December, but even though I had TOLD them what to look for, they also didn't see the ulcers or eczema which were very obvious to Kareem two weeks later when HE looked. We don't like the GI docs...they never do it right. I'll try to deal with it for three more weeks until I go back to Pittsburgh...what's another three weeks when it's been going on for at least 8-10 now??? The next visit will be a LONG day or two. I will have biopsy at 6:30 AM that day, go to clinic for pre-eval with my coordinator, then go for my DEXA (bone density) scan, go back to clinic to see Kareem, then go back to see the bone doctor about the results and to start my yearly IV infusion of Fosamax. I'm tired thinking about it!
So, the G-PACT stuff is going...well...going sort of...I'm still stuck on publishing my images and it's keeping me from making much progress on the design because I want to make sure my images will publish correctly before I spend more time on design. It's a little frustrating, but I'll figure it out. I'm right on the verge of it...I know what to do, it's just not quite working yet!!
Tomorrow I have to get up in the morning for labs by 9 AM...ugh...then go to HMC at 1 for my Aranesp injection. Then in the evening, I am taking my last newcomers class for LCBC Harrisburg. This will be my fourth attempt!! Something always comes up...I think twice I've ended up in the hospital and once I was just going insane with work (had a G-PACT board meeting overlapping!) and cancelled. Looks like I'll make it this time...even though I am still going insane from work...this time it's work that I can put aside for one evening!
Well, the Spunk just came out of his igloo desperately seeking my attention...I must go...I swear...he is so spoiled. He KNOWS it too!!!
So, we're short handed in the tiger room today at church and in my small group of girls, one said she needed to go to the bathroom. She looked like it was pretty urgent and we were not in a convenient spot in the class for me to take her!! I asked the leader of the other group if she'd keep an eye on my kids for a few, and then they ALL decided they needed to go...so we stopped the class and walked down the hall to the bathroom (which has water that smells like eggs and they of course pointed that out...)...maybe it's in theory with the whole yawning thing...and now writing about this, actually, I think I need to pee too...but I just barely did...
Spunky has been cracking me up lately...he is so funny. You'd think at some point I wouldn't laugh at the things he does over and over and over, but I always do...every little thing just makes me laugh so hard even if I've seen him do it 1,000 times. Yesterday, he discovered himself on my webcam. I was holding him in my lap with my webcam on to record it and he was playing on me and then all of a sudden just stopped...looked at the screen for a few seconds, then ran off of me as fast as he could...lol. Totally freaked him out. I put him back in my lap, and he would just not sit still...he was so freaked by that moving creature in the screen. He's reacted in a similar way to mirrors before, but not quite this dramatically. It was so funny.
So anyway, I never found my last dose of sandostatin...even though I know where I put it. I called on Friday to find out my insurance had rejected for my regular mail-in pharmacy to send it out to me again, but they would allow one of two others to send it to me. So.....being quite irritated they hadn't told me this without me initiating the call AND that it was the last day before the weekend...I had to call a new pharmacy, spend a good 15-20 minutes on the phone with them to give them insurance info...but mostly just listing about 30 meds!!! So, my coordinator jumped right on it and called to have them ship it to me by Saturday so I wouldn't be sick all weekend. Well, Saturday morning I get a call that the lady had authorized for it to be shipped for Saturday, but apparently it got messed up and didn't make it out!!! She asked if it would be ok for Monday...I'm thinking, well, no...but what choice do I have??? It was nice that she at least called to let me know though!! Otherwise I would have waited on Saturday expecting it to come and not know that it would be arriving on Monday. Hopefully she sent it out for an AM delivery. I told her I had been really sick!!
On an encouraging note, I did meet a few people with dumping this weekend. One told me that she too had a very severe case of it. She took her first dose of long acting sando three weeks ago, and it's just now kicking in. She told me that she can eat almost anything now with NO symptoms! So, maybe it will kick in in a couple of weeks and I can go off the short acting for good...but in the meantime I will take the short acting. If I find I am starting to have opposite issues, I will stop taking the short term to see if perhaps the long term has kicked in.
Still having pain with bowel movements. I have another appointment with the derm this week, but am still really wondering if I don't have a rectal fissure because it's just not healing on this really strong med for eczema. They didn't see it in my biopsy in December, but even though I had TOLD them what to look for, they also didn't see the ulcers or eczema which were very obvious to Kareem two weeks later when HE looked. We don't like the GI docs...they never do it right. I'll try to deal with it for three more weeks until I go back to Pittsburgh...what's another three weeks when it's been going on for at least 8-10 now??? The next visit will be a LONG day or two. I will have biopsy at 6:30 AM that day, go to clinic for pre-eval with my coordinator, then go for my DEXA (bone density) scan, go back to clinic to see Kareem, then go back to see the bone doctor about the results and to start my yearly IV infusion of Fosamax. I'm tired thinking about it!
So, the G-PACT stuff is going...well...going sort of...I'm still stuck on publishing my images and it's keeping me from making much progress on the design because I want to make sure my images will publish correctly before I spend more time on design. It's a little frustrating, but I'll figure it out. I'm right on the verge of it...I know what to do, it's just not quite working yet!!
Tomorrow I have to get up in the morning for labs by 9 AM...ugh...then go to HMC at 1 for my Aranesp injection. Then in the evening, I am taking my last newcomers class for LCBC Harrisburg. This will be my fourth attempt!! Something always comes up...I think twice I've ended up in the hospital and once I was just going insane with work (had a G-PACT board meeting overlapping!) and cancelled. Looks like I'll make it this time...even though I am still going insane from work...this time it's work that I can put aside for one evening!
Well, the Spunk just came out of his igloo desperately seeking my attention...I must go...I swear...he is so spoiled. He KNOWS it too!!!
Friday, January 23, 2009
5 AM Facebook Post...
It's 5 am...why am I still up?
You got me...
I don't know...
I have a migraine...
Why do I have a migraine?
I'm a bit stressed
Why am I a bit stressed?
Actually, I lied, I'm very stressed
What do I have to be stressed about? Me of all people???
HA! I dunno...I guess I need stress to keep my blood flowing...or maybe there is a real reason...
I'm stressed because I have a migraine...
I have a migraine because I am stressed...
How do I resolve that problem?
The 8 hour Tylenol I took 6 hours ago hasn't kicked in yet, but apparently my second wind did...
I lost my sandostatin...but I know where I put it...
I searched frantically for over an hour without success...
So...my body aches from the madness of throwing things around and I can't get comfortable in bed, on the couch, or anywhere...
My images aren't uploading on the G-PACT website...
The more I try to fix it, the worse I make it...
The harder I look for my sandostatin, the harder it is to find...
The more I try to fall asleep, the more awake I become...
The more I try to shut my mind down for the night, the more I start thinking about...
The more TV I watch to get my mind off of things, the more I am reminded of how I am wasting precious time...
And then that stresses me out...because I have a lot to do and not enough time...
I can't waste time...
Who needs sleep anyway??
I do...we all know...I do...
I'll eventually crash...
But for now...I might as well spend my awake stressing out time on getting something accomplished to help reduce my stress...
Maybe that will get rid of my migraine...
But looking at this computer contributes to my migraine...
And not working on my projects adds to my stress...
If my migraine is gone, I won't be so stressed about having it...
Then my stress would also go down...
And then I'd be able to sleep soundly...
If only I could find my sandostatin...
And the website would cooperate...
And the Tylenol would kick in...
And life would stop for a few weeks and let me catch up with it...
In other words...I may never sleep soundly again...
That thought makes me tired...
I think I might be able to sleep now...
You got me...
I don't know...
I have a migraine...
Why do I have a migraine?
I'm a bit stressed
Why am I a bit stressed?
Actually, I lied, I'm very stressed
What do I have to be stressed about? Me of all people???
HA! I dunno...I guess I need stress to keep my blood flowing...or maybe there is a real reason...
I'm stressed because I have a migraine...
I have a migraine because I am stressed...
How do I resolve that problem?
The 8 hour Tylenol I took 6 hours ago hasn't kicked in yet, but apparently my second wind did...
I lost my sandostatin...but I know where I put it...
I searched frantically for over an hour without success...
So...my body aches from the madness of throwing things around and I can't get comfortable in bed, on the couch, or anywhere...
My images aren't uploading on the G-PACT website...
The more I try to fix it, the worse I make it...
The harder I look for my sandostatin, the harder it is to find...
The more I try to fall asleep, the more awake I become...
The more I try to shut my mind down for the night, the more I start thinking about...
The more TV I watch to get my mind off of things, the more I am reminded of how I am wasting precious time...
And then that stresses me out...because I have a lot to do and not enough time...
I can't waste time...
Who needs sleep anyway??
I do...we all know...I do...
I'll eventually crash...
But for now...I might as well spend my awake stressing out time on getting something accomplished to help reduce my stress...
Maybe that will get rid of my migraine...
But looking at this computer contributes to my migraine...
And not working on my projects adds to my stress...
If my migraine is gone, I won't be so stressed about having it...
Then my stress would also go down...
And then I'd be able to sleep soundly...
If only I could find my sandostatin...
And the website would cooperate...
And the Tylenol would kick in...
And life would stop for a few weeks and let me catch up with it...
In other words...I may never sleep soundly again...
That thought makes me tired...
I think I might be able to sleep now...
NEED ZINC!!!!!!!!!!!!
Ok, so I seriously need some more zinc...
I have been working on the G-PACT website all day and the crazy thing won't upload my images, so I'm just getting that stupid red "X" in a box when I try to publish!!! What's REALLY annoying is that I KNOW what's wrong and how to fix it, but not completely...it's complicated to explain...I've tried all the options and it's not working, and now I realize it may be the publishing software (ftp) and not Dreamweaver that needs to be worked on...sigh...so I yanked out most of my hair. Now I need to increase my zinc supplements to grow it all back...
And to top it off....how do you lose something when you KNOW exactly where you put it??? I took out my last vial of sandostatin and put it by my computer. I swear...that's where I put it. Yes I did!!! I know I did!! Then I went to take it and it's not there??? Not only is it not there, but it's not ANYWHERE!!! I tore this place apart looking over every square inch and had no success!!! Dinner without sandostatin!!! Hopefully, I will receive a new shipment today (Friday, yah, I'm up late...). I was not happy. I even looked inside my tostitos and pretzel bags since I had been snacking on those...in pockets of close I didn't wear today, dug through the trash...quite an event since I just cleaned my fridge out and there was all kinds of gooey stuff in there, pulled off my couch pillows, checked Spunky's cage, went through all my med bottles, checked every shelf, table, drawer, and container I own...even if I haven't opened it in months...and it's just nowhere to be found!!! I grabbed a bag of Starburst and looked in there...it wasn't there...I threw it across the room...then I had a bunch of candy to pick up off the floor. I knew I shouldn't haven't cleaned...everytime I do I lose something...but I swear...I know where I put this sandostatin!! Do you think vampires like sandostatin and steal that from me too? huh huh??
I seriously need some sleep...I'm a little stressed out...a little?? I have a migraine and pain all over. I have ever since the sandostatin took off somewhere and I spent over an hour scrambling around looking for it. My body can't handle that much activity so it's freakin' on me. That's desperation...the stuff is like GOLD to me. I'd rather lose almost anything else...sigh...it's a new day already...hopefully things will be better whenever I decide to drag myself out of bed...
I have been working on the G-PACT website all day and the crazy thing won't upload my images, so I'm just getting that stupid red "X" in a box when I try to publish!!! What's REALLY annoying is that I KNOW what's wrong and how to fix it, but not completely...it's complicated to explain...I've tried all the options and it's not working, and now I realize it may be the publishing software (ftp) and not Dreamweaver that needs to be worked on...sigh...so I yanked out most of my hair. Now I need to increase my zinc supplements to grow it all back...
And to top it off....how do you lose something when you KNOW exactly where you put it??? I took out my last vial of sandostatin and put it by my computer. I swear...that's where I put it. Yes I did!!! I know I did!! Then I went to take it and it's not there??? Not only is it not there, but it's not ANYWHERE!!! I tore this place apart looking over every square inch and had no success!!! Dinner without sandostatin!!! Hopefully, I will receive a new shipment today (Friday, yah, I'm up late...). I was not happy. I even looked inside my tostitos and pretzel bags since I had been snacking on those...in pockets of close I didn't wear today, dug through the trash...quite an event since I just cleaned my fridge out and there was all kinds of gooey stuff in there, pulled off my couch pillows, checked Spunky's cage, went through all my med bottles, checked every shelf, table, drawer, and container I own...even if I haven't opened it in months...and it's just nowhere to be found!!! I grabbed a bag of Starburst and looked in there...it wasn't there...I threw it across the room...then I had a bunch of candy to pick up off the floor. I knew I shouldn't haven't cleaned...everytime I do I lose something...but I swear...I know where I put this sandostatin!! Do you think vampires like sandostatin and steal that from me too? huh huh??
I seriously need some sleep...I'm a little stressed out...a little?? I have a migraine and pain all over. I have ever since the sandostatin took off somewhere and I spent over an hour scrambling around looking for it. My body can't handle that much activity so it's freakin' on me. That's desperation...the stuff is like GOLD to me. I'd rather lose almost anything else...sigh...it's a new day already...hopefully things will be better whenever I decide to drag myself out of bed...
Wednesday, January 21, 2009
Dump the dumping!
So, I started on the long acting sandostatin on Monday...let's just say it DIDN'T work! I had some symptoms Monday night and Tuesday night a full blown attack! I called my coordinator and we are going back to the short acting, 3x/day injections. This is a bit discouraging because I bruise so easily and it's just a pain to do it 3x, half an hour before meals, but it works and it's worth it. I don't want to go through that severe dumping attack again!!! I was starting to figure out the balance between side effects, meds, when to take meds to prevent side effects, etc so I know where to restart on the short acting again and should get it under control pretty quickly again. My coordinator is going to ask them to overnight it to me and I hope they can. Fortunately, I still have enough for today!
Still trying to move on the G-PACT site. I've had some setbacks, but still making good progress on that and have some good ideas started for the awareness video too. Lots to do...so little time!
Naptime again, plus I want to take my morning dose of sandostatin...I just can't knock this crazy fatigue from the anemia. My color is much better, but I still feel really sluggish. Of course, that could be in part due to the dumping flare up yesterday, but I have been feeling like this for quite a while. I've spent a lot of time in my bed instead of on the couch which is always a sign that I'm not feeling well...usually I prefer to hang with the Spunk in my den. Seems like he's having a lazy day too today. He just stuck his nose out of his igloo and yawned at me!!! He's such a babe...I need to clean his cage. How can one little pig make such a mess and poop so much??? I guess he doesn't have much else to do besides eat, sleep, and poop...but he's so darn cute...
Still trying to move on the G-PACT site. I've had some setbacks, but still making good progress on that and have some good ideas started for the awareness video too. Lots to do...so little time!
Naptime again, plus I want to take my morning dose of sandostatin...I just can't knock this crazy fatigue from the anemia. My color is much better, but I still feel really sluggish. Of course, that could be in part due to the dumping flare up yesterday, but I have been feeling like this for quite a while. I've spent a lot of time in my bed instead of on the couch which is always a sign that I'm not feeling well...usually I prefer to hang with the Spunk in my den. Seems like he's having a lazy day too today. He just stuck his nose out of his igloo and yawned at me!!! He's such a babe...I need to clean his cage. How can one little pig make such a mess and poop so much??? I guess he doesn't have much else to do besides eat, sleep, and poop...but he's so darn cute...
Monday, January 19, 2009
The Saga Continues
I started the monthly Sandostatin today. I have had a little dumping tonight after dinner, but not much. My hope is that it is just taking a little bit of time to fully kick in since I didn't get one big dose at once right before dinner. Please pray that it will be as effective in the end.
I lost another transplant friend the other day, the 15th of January. I have started to lose count at this point. So many I have been very, very close to, some I have know from occasional conversations, but regardless we are all connected and like family. Kelly is one I was close to as she was my roommate during my second, three week, admission to UPitt in January 2005. We spoke frequently in clinic and she and her mom have followed me and my story for years. We were both in the hospital at the same time Christmas 2005 and I remember she dropped by and visited me before heading home. I just saw her a few months ago in 7W and we got a chance to catch up. She passed away of liver failure and anemia. Please keep her family in your prayers. She has two children.
I have started progress on G-PACT's awareness video by meeting with my brother in law who will probably be producing it. He had some great ideas and got my mind rolling in the right direction. Please pray that we can make something really powerful to share our stories and need for awareness within the next few weeks. Also, pray for me to have the strength and energy to have a powerful launch to our new website and complete all the design work needed for our media awareness kit.
I am so thankful to the many people who are jumping on board to help with G-PACT and getting involved in other ways. It's encouraging to see the growth and know that we are having such an impact. This helps me get through the tough days and pushes me to keep fighting when often the cause seems impossible, overwhelming, or too emotionally challenging.
No funny puns tonight. I'm really tired...maybe tomorrow.
I lost another transplant friend the other day, the 15th of January. I have started to lose count at this point. So many I have been very, very close to, some I have know from occasional conversations, but regardless we are all connected and like family. Kelly is one I was close to as she was my roommate during my second, three week, admission to UPitt in January 2005. We spoke frequently in clinic and she and her mom have followed me and my story for years. We were both in the hospital at the same time Christmas 2005 and I remember she dropped by and visited me before heading home. I just saw her a few months ago in 7W and we got a chance to catch up. She passed away of liver failure and anemia. Please keep her family in your prayers. She has two children.
I have started progress on G-PACT's awareness video by meeting with my brother in law who will probably be producing it. He had some great ideas and got my mind rolling in the right direction. Please pray that we can make something really powerful to share our stories and need for awareness within the next few weeks. Also, pray for me to have the strength and energy to have a powerful launch to our new website and complete all the design work needed for our media awareness kit.
I am so thankful to the many people who are jumping on board to help with G-PACT and getting involved in other ways. It's encouraging to see the growth and know that we are having such an impact. This helps me get through the tough days and pushes me to keep fighting when often the cause seems impossible, overwhelming, or too emotionally challenging.
No funny puns tonight. I'm really tired...maybe tomorrow.
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